Clustered Errors @ClusteredErrors
Working to get to the bottom of my “idiopathic” symptom cluster and help others in the process. #Myodesopsia #EyeFloaters #VisualSnow #FlammerSyndrome #Insomnia USA Joined January 2022-
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Lawsuit: Award for COVID infection in healthcare in Germany "60,000 euros for pain and suffering and damages is 10,000 euros more than he sued for..the court based the amount on cases where patients had been infected with MRSA or HIV. archive.today/JV1zy
“In one sentence tell me why you would not recommend LASIK”
@alhkim @Invivyd 3+ hours in a #medtwitter facility is a HUGE risk of Covid exposure for patients actively avoiding in person healthcare because there are no #maskmandates, staff can be actively infectious at work, #ventilation status unknown-#PEMGARDA REALLY needs home infusion approval @Invivyd
FDA authorizes new drug to protect immune compromised from Covid-19 statnews.com/2024/03/22/cov… via @statnews
As counterintuitive as it sounds, I do think the general level of Covid awareness would increase under a second Trump term. Not because of anything Trump himself would do, but because liberals/Dems would regain the ability to recognize how the state has given up on public health.
Agree 💯 re: toxic positivity. The two added dimensions with Long Covid are: 1. There will be treatments that help. Being reassuring slows down urgency of research. 2. Prevention: people need to know the full consequences of infections, even if these sound scary.
Agree 💯 re: toxic positivity. The two added dimensions with Long Covid are: 1. There will be treatments that help. Being reassuring slows down urgency of research. 2. Prevention: people need to know the full consequences of infections, even if these sound scary.
We are in a race against time when it comes to Covid. Our handling of it must be for the reality of 2024, not the hopes of 2022. #LongCovid #Children
Today, I told my friend I think healthcare workers should mask to protect their patients. I forgot his wife is a nurse. Here’s how it went. 1/
It is clear that Ampligen is good for SOME cohort. But it seems these trials are being run by raccoons in a trench coat because they keep burying this cohort in study results due to garbage selection. 🫠
It is clear that Ampligen is good for SOME cohort. But it seems these trials are being run by raccoons in a trench coat because they keep burying this cohort in study results due to garbage selection. 🫠
Ampligen phase 2 study results are out. The company saw hints of success, but the primary endpoint was not met. These do not look like results that will lead to any sort of expedited approval aimimmuno.com/aim-immunotech…
TINNITUS - MY STORY. When I dev tinnitus in 2015 I was not concerned, it was mild. In Feb 22 it became severe and increased with external sound. Sound caused pain. Almost complete isolation for a yr + depression and paranoia as the fallout. We need treatmemt! #tinnitus
Virios Therapeutics Announces Plans to Advance Development of IMC-2 as Treatment for Symptoms Associated with Long-COVID | BioSpace biospace.com/article/releas… #jobs #MyLongCovidAdvocacy #LongCovid
I had to suggest vertical heterphoria to my opthalmologist before he decided to test me for the convergence issue. I ended up with a prism in one lens and it made such a MASSIVE difference in the number of headaches I had!
I had to suggest vertical heterphoria to my opthalmologist before he decided to test me for the convergence issue. I ended up with a prism in one lens and it made such a MASSIVE difference in the number of headaches I had!
Doctors tell me not to “google my symptoms”. Bitch please, I’m using Google Scholar to read cutting-edge, peer-reviewed, published research on conditions you only have 1 barely-remembered outdated med school lecture on. We are not the same.
This workshop was FANTASTIC! I learned so much and am so grateful to my fellow speakers. The recording will be up in five days, and I'll post it. In the meantime, I thought I'd go ahead and post a thread with the text of my talk.
This workshop was FANTASTIC! I learned so much and am so grateful to my fellow speakers. The recording will be up in five days, and I'll post it. In the meantime, I thought I'd go ahead and post a thread with the text of my talk.
This is going to be a great webinar! Huge 🙏 to Beth for making this happen. Please register & attend. Let's show that the community wants research into #MEspine structural neurological conditions. #CCI #AAI #TetheredCord #IntracranialHypertension #CSFleaks Thanks in advance…
This is going to be a great webinar! Huge 🙏 to Beth for making this happen. Please register & attend. Let's show that the community wants research into #MEspine structural neurological conditions. #CCI #AAI #TetheredCord #IntracranialHypertension #CSFleaks Thanks in advance…
Tinnitus research is another good example of this. The field is rife with psychologizing and obsessed with CBT-based quackery like "tinnitus retraining therapy"/"Jastreboff technique," while actual research into root causes receives no meaningful support. youtube.com/watch?v=IjI7sZ…
Tinnitus research is another good example of this. The field is rife with psychologizing and obsessed with CBT-based quackery like "tinnitus retraining therapy"/"Jastreboff technique," while actual research into root causes receives no meaningful support. youtube.com/watch?v=IjI7sZ…

John K @j_b_kennedy
17K Followers 6K Following I tasted chronic illness in the form of Long Covid. It tasted horrible. But I was lucky & improved over 4 years. Now I’m here for those still struggling
Shaney Wright @ShaneyWright
16K Followers 449 Following @WestHam Fan ⚒ 🏴 | Accidental Centrist I Pro-Pragmatism and Real World Outcomes I Anti-Ideologues.
Brian Fog @useless_priest
8K Followers 5K Following Mild LC/ME Apr 2022 | ME, when triggered by SARS-CoV-2, is a subset of Long COVID | Repeated triggering of PEM leads to lowering of baseline | 🏳️🌈 | 🇮🇪
Pete 😷 #COVIDisAir... @PeteUK7
24K Followers 8K Following Chemistry. ChemEng. Advocate for shared air mitigations. FFP3/N95 masks, ventilation, Far UV. An extremist (apparently) as I want Public Health back #Spaceshost
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9K Followers 6K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
All of them snollygos... @OnlyEnnui
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Vijay Iyer PhD @vijayiyer312
4K Followers 2K Following Patient advocating science for #mecfs & #dysautonomia (incl via #longcovid & #postvac).👷🏾♂️Support #neuroscience users & use cases of @MATLAB. Tweets my own.
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Renegade Research @RenegadeRes
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Timea @Timea2QuesQ4
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National Alliance for... @NAEVRAdvocacy
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Belinda Ballard @BallardBel97324
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38 Followers 975 Following I live alone now and enjoy business, traveling, shopping, food and music. I have a calm personality and I hope we can be friends.
Nitooreyt @nitooreyt53048
38 Followers 1K Following I live alone now and enjoy business, traveling, shopping, food and music. I have a calm personality and I hope we can be friends.
socialbutterflyッ @ittyfly
738 Followers 3K Following 📍Entrepreneur🤞🧠1 Beautiful🙎🏽♀️1 Soul 👻.1 Unique Personality👍🏼.1 Amazing Voice🎤1 Loving Heart❤.1 Smile😀.1 Inspiration💡
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Kendra @SurvivingCFS
11K Followers 8K Following Disabled from #mecfs | Disability rights advocate | Formerly homeless now living in an abusive nursing facility | English teacher trying to survive | She/Her
Claudia @stevenson43clau
320 Followers 3K Following
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27 Followers 390 Following
Katrin Boniface @KatBoniface
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Alcon Science @SeeAlconScience
1K Followers 2K Following Learn about the science behind innovations from Alcon. This channel is intended for US Based HCPs only. See our community guidelines: https://t.co/OhMFHMoUKa
Noates @Noates22219
4 Followers 24 Following
McPherson Eye Researc... @McPherson_ERI
90 Followers 288 Following Sign up for Cycle for Sight 2025 and support innovative research at the McPherson ERI! Click here: https://t.co/srvMnBtPra
kyle @notkent
2K Followers 3K Following How quickly it went from "pandemic of the unvaccinated" to "of course I don't mask, I have an Aranet" For those still masking, sincerely thank you
Caroline Struthers @Healthy_Control
3K Followers 5K Following Increasingly grumpy `healthy control’ research participant. Working to develop a way to involve patients in designing health research from the beginning
المهندس الم... @al_iiemar43370
53 Followers 368 Following شغوف بالتصميم المعماري أهدف لرفع مستوى التصميم المعماري وتقليل تكلفة المسكن ، البساطة نصف الجمال الاتقان هو كل الجمال للتواصل واتس اب على الرقم/00967717736768
Tat Yana @Tat_Yana_13
17 Followers 2K Following
Karl Darren Baty @KARLDBATY
829 Followers 5K Following Myalgic Encephalomyletis (ME/CFS) patient since 1989, ME/CFS research advocate, Fresno State Grad, Warriors, Bills, Pirates, Penguins, Fresno State Bulldogs
Brenda Brenner @BrendaBrenner3
59 Followers 278 Following Retired educator 31 yrs, premed/humanities URI , Ma Brown University
Serpina, Longhauler, ... @SerpinaLonghaul
2K Followers 4K Following Longhauler in search of health & equanimity. Presumed COVID infection in March 2020. #LongCovid deniers summarily blocked. RT not endorsement. #FBLC
Post-Viral Trials New... @postviraltrials
4K Followers 158 Following No longer posting updates here – find me at https://t.co/jJvezA5luH
Jo Hunt (activism, al... @HealthHubris
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Dr Claire Taylor @drclairetaylor
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LongCovidPharmD @organichemusic
35K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Hannah Davis @ahandvanish
56K Followers 4K Following Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Dr Elisa Perego @elisaperego78
35K Followers 1K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views own
John K @j_b_kennedy
17K Followers 6K Following I tasted chronic illness in the form of Long Covid. It tasted horrible. But I was lucky & improved over 4 years. Now I’m here for those still struggling
Prof. Akiko Iwasaki @VirusesImmunity
213K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII
Eric Topol @EricTopol
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Jess 🇨🇦 @MeetJess
49K Followers 4K Following Lover of all animals. Nature admirer. Elderly advocate. Bookworm. Sarcastic & compassionate. Music lover. Fierce Mama bear. #WeNotMe #COVIDISAIRBORNE
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AJ Leonardi, MBBS, Ph... @fitterhappierAJ
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S Blitshteyn MD, FAAN... @dysclinic
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Daniel Brittain Dugge... @dbdugger
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Janet Dafoe @JanetDafoe
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Christoph Ströck @cstroeckw
8K Followers 603 Following Soon, people will look back in disbelief at what has happened to patients with ME/CFS | Godspeed 🙇🏼
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30K Followers 4K Following #LongCovid interested Lung Doctor |[email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
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Dr Claudia William MD... @DrWilliamMD
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620 Followers 3K Following #Gaza #Medicaid #FamilyCaregivers #DontMessWithMedicaid #CareCantWait #Caregiving #YallMasking #MaskUp #dementia #eldercare #Uncommitted #FreePalestine #N95
Julia Marie @julia_doubleday
13K Followers 3K Following Writer of The Gauntlet, about COVID and public health. Read: https://t.co/uzPwhelci9 Subscribe: https://t.co/ZOMe31Rwbo
Amy Cook @AmyCookOC
2K Followers 2K Following run, bike, kayak, dive, travel, eat, drink, sleep and repeat.
INOVAIT @INOVAITCanada
76 Followers 175 Following The Canadian Network for Image-guided therapy (IGT). Transforming healthcare through the integration of #AI in #IGT. Led by @Sunnybrook Research Institute
Nicole @n_e_rd
4K Followers 2K Following She/her. Tattooer. Woodburning Artist. Past vet tech. Capitalism is destroying the planet. Covid is destroying our health. NRDArt.bsky 😷🍉
alex @yesallcrops
5K Followers 339 Following Hater, lover, probably tired today Permanent revolutionary masking! Liberation!🏴Ⓐ🌷🐿
Maria Pastor @Drewhywhywhy
240 Followers 881 Following Dr Psychology, mother of 3, #Dysautonomia, #MCAS, #hEDS #neuroimmuneinflammation #ME/CFS. Proud participant R=50 @remissionbiome
Steve T @noxygen
3K Followers 3K Following Choose wisely. Love freely. Travel... safely. Living with Weltschmerz. Holding on and holding out. Maybe Kepler-452 b is having a better time than us. 🔴⚪🍉😷🧂
Malini 🇵🇸🍉�... @alitlstrawberry
8K Followers 2K Following మాలిని she/her, 30-something non-trad pre-med, chronically ill/disabled, poodle parent, anti-imperialist, anti-zionist #FreePalestine
Erin Candy 🇨🇦 /... @erincandy
14K Followers 4K Following 🇨🇦#LeafsForever •SCIENCE/Sports/Movies/History/Gaming/Politics/Cats• Anti-disinfo activist. Leukaemia cancer survivor! #POTS #LongCovid since March 2022 ♑️😷
Professor Deborah Lup... @DALupton
26K Followers 1K Following Professor @UNSW Sydney. Risk, health, digital tech. Blog https://t.co/Yh52haFKRu
Hangtooth @Squijibo
3K Followers 8K Following will typo and make errors continuously due to nerve damage in hands and neurological issues in general
OBIO @OBIOscience
3K Followers 3K Following Growing the Human Health Science Industry through policy, commercialization, talent & access to markets #healthscience
Invivyd @Invivyd
2K Followers 520 Following Invivyd is improving lives with medicines for serious infectious diseases. #mAb #covid19
JWeiland @JPWeiland
31K Followers 219 Following Scientist. Infectious disease modeler. Tweets and spelling mistakes are my own Models and analysis seen on @Newsweek @Fortunemagazine @FaceTheNation @TIME
Biobot Analytics @BiobotAnalytics
12K Followers 1K Following Public health insights powered by wastewater
My Long Covid Advocac... @myLCadvocacy
2K Followers 3K Following I aggregate, curate and post Infectious Disease Science, Research, Stories & News
Mike Hoerger, PhD MSC... @michael_hoerger
38K Followers 12K Following Expert in weighing medical evidence, cancer, COVID forecasting & mitigation, health disparities, financial analytics. 120 publications. PhD program director.
Carly Urban @carly_urban
3K Followers 1K Following Econ Prof at Montana State Univ, Research Fellow @iza_bonn, interested in household financial well-being, lover of mountain adventures
Kyle @klmatter
570 Followers 525 Following Engineer, father, and avid outdoor enthusiast. Current dealing with post viral illness/long COVID. Trying to fix that last one.
They Call Me Bane @BaneOfCovid
8K Followers 2K Following My main account. baneofcovid on BlueSky. Burn Corpo Shit! Grand Trine Fire King. Built on a Plant Diet. @veinofbane to get a show and support me.
ErKaDeLa @ClareTa26975369
442 Followers 1K Following "The Greatest Obstacle to Discovery Is Not Ignorance—It Is the Illusion of Knowledge" Boorstin
Salvatore Mattera @SalvMattera
13K Followers 1K Following Finance manager @Google. Biohacker. Best source for Long COVID info: https://t.co/cIDx3DafoK - All opinions my own.
Novavax @Novavax
61K Followers 160 Following Producing next-generation vaccines to help protect health through partnerships and R&D. See what’s developing at https://t.co/KU31yMhv7w & https://t.co/vOlgl99GU0
kyle @notkent
2K Followers 3K Following How quickly it went from "pandemic of the unvaccinated" to "of course I don't mask, I have an Aranet" For those still masking, sincerely thank you
Antiviral Marketing @antiviral_mktng
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Mom for Novavax @MomNovavax
2K Followers 533 Following US Taxpayer wants FDA explanation for my $1.8 billion in taxpayer money which funded a non-MRNA approved worldwide, but not in US? Our $, THEIR choice?
Mike Sheikh @MikeSheikh2
879 Followers 321 Following Chief Communications Off. #Bioxytran $BIXT @AF_Academy Grad & Pilot ExBroker @MorganStanley. Expert in #Galectin research #cancer #MASH #COVID #LongCovid #FLU
🍉Roma-Jerome (RJ):... @jacksojj88
3K Followers 5K Following Educator, historian, fierce advocate for children #EradicateSARS2, #Blacklivesmatter #StopAsianHate #DAYS #Sprina #themeparks 🍉🏳️🌈(they/them/he/him)
ACE — Action for Ca... @theacecoalition
1K Followers 259 Following We are building the movement to protect our families and communities. Massive action to end the pandemic and support long covid. #FreePalestine
laurie allee (retired... @laurieallee
24K Followers 9K Following ✌😷 Account is archive. Pinned tweet has my Covid threads, including link to my website where I update daily. I don’t check messages here.
Kimer Med @KimerMed
194 Followers 57 Following We're developing a family of broad-spectrum antivirals to treat viral diseases (Dengue, Zika, Flu etc), and for protection against future pandemics.
Flor 🥀 @lugaresxcomunes
2K Followers 1K Following we need funding for research and treatments for Myalgic Encephalomyelitis and Long Covid NOW | #pwME #adhd
Craniocervical Instab... @cci_fund
58 Followers 135 Following 📢 Raising awareness about #CraniocervicalInstability 💰 Raising funds for CCI research ❤️ Support CCI patients in their search for diagnostics and treatment
Alexander Tin @Alexander_Tin
11K Followers 7K Following Reported for CBS News in D.C. on federal public health. Raised in sunny Nevada. Decided to move overseas to be near family.
demersus (that pengui... @DeMercy_
1K Followers 707 Following 23, HoH, AuDHD, long covid, white, nonbinary lesbian, so-called US, 18+
Elke Asen @ElkeAsen
2K Followers 3K Following Previously: MSc in Economics Student @LSEEcon & tax policy analyst @taxfoundation | Life on Pause since Dec ‘21 due to #LongCovid/#MECFS
Lonnie R Marcum, PT, ... @LonnieRhea
4K Followers 1K Following Wife/Mother•Science Writer•PT•HC Admin•Disease Detective•Voracious Reader•Connoisseur of ☕️•Graduate CSUN•Olive Farmer•HHS 2019-2022 TBDWG Tick Subcommittee
Paul Sax @PaulSaxMD
58K Followers 2K Following Harvard/Brigham Infectious Diseases doctor, writer, @CIDJournal editor, educator. Prefer baseball to football, pizza to sushi, dogs to cats, Beatles to Stones.
Marianne Williamson @marwilliamson
2.7M Followers 945 Following Author, activist, spiritual lecturer, grandmother
Gregory Travis. @greg... @greg_travis
17K Followers 2K Following Have moved to Bluesky. Find all of my COVID posts and data there now (@gregorytravis.com) Only still here to keep up the fight against the oligarchy
Dateability @DateabilityApp
817 Followers 96 Following The only dating app for disabled & chronically ill people. ❤️ featured in Forbes, CBS Mornings, WaPo, NPR + more! IG: @DateabilityApp
Sue [email protected]... @inkblue01
8K Followers 1K Following Collection of papers, videos and images on #LongCovid