Canada, I love you and visit you often 🇨🇦, but.... what's up with your non-existent care for patients with #autonomic disorders? If you think things are bad in the US, it's nothing compared to what my Canadian patients are going through, especially if they live up North or West…
I'm not planning on disappearing this account, but I'll likely be using it much less than i already do (which is next to never lol).
So anyway, I've got a Mastadon account now, @[email protected], and hope to one day learn how to use it! 😁
Hey. Before Twitter goes away, maybe help me find my hero?
On Dec. 27th, 2020, my husband passed out while driving, and our car crashed at 70mph on I-10 near Jacksonville, FL.
A driver headed the opposite direction saw the crash, exited the interstate, and got back on- 1/6
This @bionicreading approach to typeface (pictured, on right) is amazing! I have Irlen Syndrome, which causes letters, words, and lines to move around the page, but the Bionic Reading mode keeps everything in place.
I hope it becomes available for eBooks, @kobo!! 😉😉
56K Followers 43K FollowingAspiring Author ✍🏼📖 |Singer/Actress, Trainee Therapist on hold due to #MECFS ♿️ for 6 years | #POTS / #IST✨Spiritual Awakening. Lessons from the void. 💖
1K Followers 5K FollowingSeverely injured at work my life destroyed by a corrupt system. Advocate for healthcare patients #IndividualizedCare #IPP #hEDS #CPP #EDS #IPS
3K Followers 3K Followingfeel like a mole living in a dark ME/CFS #mecfs hole sharing thoughts ,trying to make a small difference. Lancs U.K. - #bekind also https://t.co/KxMHrvrqZ8
455 Followers 627 FollowingPost-acute infectious illness & ME/LC advocate | West Nile Virus/EBV/H.Pylori long hauler | prev @MSF now disabled former nurse | Equity in health care
518 Followers 2K FollowingAdvancing recognition, empathy, treatment and support services for Chronic Immunological and Neurological Diseases (CIND) including ME, FM, ES/MCS, CFS
817 Followers 380 FollowingSevere #MyalgicEncephalomyelitis since 1989. Advocate for #MyalgicE per #MEICC, Ramsay/Hyde. See https://t.co/spkz9AttU7 and/or https://t.co/2hHbNgW3ct #pwME.
487 Followers 528 FollowingCanada’s first fully & openly disability-run opera company, #MakingOperaAccessible and creating opportunities for emerging & underrepresented artists.
29K Followers 18K FollowingJoanna (she/her) 29 Queen of Allergies 👑 MCAS. POTS. EDS. CCI 💛 Autistic. ADHD. OCD. PMDD. Striving to live my best life 💕 #ForTinu
1K Followers 508 FollowingThornback, Antifascist, Bad Crip
"Make it accessible or burn it down" - GP
Vaguely insane but mostly harmless
https://t.co/rP6BE1eFBx
She/Her
7K Followers 5K Following💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
11K Followers 1K FollowingHypermobility Soecialist | Movement Educator | Author of "Hypermobility Without Tears" | https://t.co/apnb28QRmw | Founder & CEO of The Zebra Club
257 Followers 1K FollowingJust questioning what I know.
Disabled - Bad Crip
They/Them
Non Binary Pansexual Queer Goth
I like ttrpgs and crafting.
I have a service cat. 🐈
#StillTreading
1K Followers 2K FollowingFounder of the ROCK ME Project. Wife, Cat mom, Author, Advocate, and medical DUMPSTER FIRE. Living life one SPOON at a time.
ME is a DISEASE not a LIFESTYLE!
4K Followers 2K FollowingCFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Proud “Anti-Recovery Activist” On justjo@bskysocial if X goes tu
2K Followers 3K FollowingBit poorly. Campaigning for ME Research/Awareness. Music ⭐️ Films ⭐️ Sport ⭐️ Comedy ❤️ Nieces ❤️ Animals ⭐️ Spurs ⭐️ Thomas Dolby ❤️ Janey ❤️
800 Followers 1K FollowingI retweet and initiate small community projects and bundle our voices to raise awareness 🇬🇧🇩🇪 / send valuable tweets via DM /
#MEcfs #pwME #millionsmissing
5K Followers 5K FollowingNTI supports #DisabilityRights, #inclusion, #A11y. In the US we pair #disabled people who provide great #CX with contact centers
281K Followers 393 FollowingCLIMATE is the issue . Love the Earth @GreenpeaceNZ . All humans born equal. Resist Cruelty and Greed on every level. Love the world. ✌️ Peace
41K Followers 5 Following| Actor | Game Dev | Producer | Founder of @surgentstudios | | Alyn of Hull in @houseofdragon #HOTDS2 | Creative Director of @zauthegame
224K Followers 1K FollowingHe's not in it for the likes. Watch Real Time with @BillMaher Fridays on @HBO & @HBOMax.
The contents of this account don't reflect the opinions of HBO.
315K Followers 3K FollowingGlobal Human Rights Activist. Chairman of the Board for @DrumMajorInst. Cofounder of Realize the Dream & @GiveUsTheBallot. Press: [email protected].
37K Followers 2K FollowingWriter | Artist | Author of A STILL LIFE: A Memoir | Just living quietly |
Find me on Instagram and Threads as @porridgebrain or on Substack below 👇
15K Followers 66 FollowingA passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
9K Followers 277 FollowingEx athlete, biker, climber, 1st class biomedicine grad. Entire life lost 2017 post viral ME/CFS. C💉injured 2021 thus turned from pro to anti vax
29K Followers 18K FollowingJoanna (she/her) 29 Queen of Allergies 👑 MCAS. POTS. EDS. CCI 💛 Autistic. ADHD. OCD. PMDD. Striving to live my best life 💕 #ForTinu
1K Followers 508 FollowingThornback, Antifascist, Bad Crip
"Make it accessible or burn it down" - GP
Vaguely insane but mostly harmless
https://t.co/rP6BE1eFBx
She/Her
1K Followers 556 Following#ME💙F.M.💜I.B.S. Glaucoma💚B12💉Addison Biermer
🇳🇱 NL advocate for biomedical research💰and understanding. Life should't be so hard as it is for some👣
1K Followers 436 FollowingFormer US Foreign Svc Officer & mother now advocating for myself, my son & others w #MEcfs #LongCOVID #POTSDysautonomia & other infection-assoc chronic diseases
7K Followers 5K Following💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
2K Followers 2K Following#hEDS #MECFS #POTS. Peer dxd autistic. Ace. Not made for gravity on earth. Taal als mix&match. In toxic relationship with the government.
They/Them or She/Her
11K Followers 1K FollowingHypermobility Soecialist | Movement Educator | Author of "Hypermobility Without Tears" | https://t.co/apnb28QRmw | Founder & CEO of The Zebra Club
257 Followers 1K FollowingJust questioning what I know.
Disabled - Bad Crip
They/Them
Non Binary Pansexual Queer Goth
I like ttrpgs and crafting.
I have a service cat. 🐈
#StillTreading
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