Chelby @MECFS_Free

24 severe #pwME & #POTS Melbourne Joined July 2019

Tweets

429
Followers

186
Following

214
Likes

3K

Katie @katie_andME

2 years ago

I’ve written a poem for #severeMEawarenessday #severeMEWeek2023 Next month I’ll have been bedbound for 3 years with #severeME #VerySevereME Here’s the link to the post on my blog. If you have capacity (although not all of us do) please give it a read katielivingwithme.blogspot.com/2023/08/severe…

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Chelby @MECFS_Free

3 years ago

Thanks Roo Panes for spending 4,840 minutes with me in 2022. I couldn’t stop listening to Tiger Striped Sky. In the top 0.01% of listeners. #SpotifyWrapped open.spotify.com/artist/0XHM5ZN…

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Dr Claire Taylor @drclairetaylor

3 years ago

Clinical pearls for #LongCovid 1. Find the clots. They are there. If not PE or DVT there are Microclots. 100% of all long Covid patients tested so far have them.

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#MEAction Network @MEActNet

3 years ago

If you believe you have seen Jennifer Brea @jenbrea since Wednesday June 15th - Last seen: Near Gate D37 at Miami Int’l Airport - Age: 39 - Height: 5'6" - Weight: 135 lbs - Race: Mixed - Sex: Female - Eyes: Brown Please email [email protected] or call (805) 876-4509.

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Rainbow Kitten Surprise @RKSBandOfficial

3 years ago

Hi everyone! I’m Ela, lead singer of Rainbow Kitten Surprise. Over the past couple of years, I’ve been doing some major soul searching in the pursuit of my authentic self. I’m happy to share with you that I am trans. My pronouns are she/her.

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gigi @gigivsthegalaxy

4 years ago

My best friend Amelia, a pwME, is fundraising for a secondhand wheelchair (their government has denied them this, despite proof from MULTIPLE professionals this is what they need). Please share and donate, let’s show them what the ME community can do 💪🏾✨

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Western Health @western_health

4 years ago

Our emergency departments at Sunshine, Footscray, and Williamstown Hospitals are currently under extreme pressure. Please DO NOT attend the ED unless absolutely necessary. Those with mild COVID symptoms seeking PCR or rapid tests should NOT ATTEND. Thank you for your cooperation.

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Janet Dafoe @JanetDafoe

4 years ago

Urgent Request for experiences of being harmed by GET and/or CBT facebook.com/WAMESMECFS/pho…

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Dan Wyke 🦠➡️🧠🔥 @Dan_Wyke

4 years ago

If people understood #MECFS in the way they understand, say, MS or cancer, perhaps they would be less blasé about getting #LongCovid. #r4today

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Daniel Missailidis, PhD @DanMissailidis

4 years ago

Hi everybody. We are currently recruiting for ongoing ME/CFS research which aims to further investigate abnormal energy supply in cultured cells from pwME and healthy controls. Info can be found here: drive.google.com/folderview?id=…

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Chelby @MECFS_Free

4 years ago

Bedbound & housebound people need access to the COVID vaccine too! #severeME #COVID19Vic #pwME #millionsmissing #DisabilityTwitter

Queer Fluidity @AmeliaTang4

4 years ago

Bedbound & housebound people need access to the COVID vaccine too! #severeME #COVID19Vic #pwME #millionsmissing #DisabilityTwitter

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A Current Affair @ACurrentAffair9

4 years ago

Tiffiny Hall has achieved just about everything in the fitness world – but her diagnosis with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome is set to be her greatest challenge yet. #9ACA 9now.nine.com.au/a-current-affa…

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Anil van der Zee © @AnilvanderZee

4 years ago

Since this video about #LongCOVID, ME & misogyny "only" got 23 k viewers in a day or two I'm hoping you'll have a look. “I was once pronounced clinically dead with cerebral malaria but I recovered from that much quicker than Covid-19” - @GeorgeMonbiot youtu.be/lQpvsgiCZno

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Bejeezelbub @BayouMystere

5 years ago

1) If I´m being honest, when talking about the lost potential of #pwME , I do not care if before falling ill you excelled academically or if you were doing what is "less impressive" by societal standards. A lost life is a lost life. #meawarenesshour

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#MEAction Network UK @MEActNetUK

5 years ago

Gigi is back in hospital, and needs you to retweet this to let @LG_NHS and @NHSLewishamCCG know their treatment of Gigi is being watched, and the ME community stands behind her. #HelpGigiHeal #MEisReal #pwME @JanetDaby @healthdpt @PHE_UK @bentravisceo @MedicalID_LGT @MattHancock

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Tina Rodwell #TeamPatient🇺🇦🕊🌎🕊💞 @TinaRodwell1

5 years ago

Sadly GIgi is back in Lewisham hospital. After all Lewisham said that they would put everything in place to care better and learn more 2 Dr have already asked what ME is and refused the reality of what this complex condition holds. GIgi needs you let’s once again #StandUp4Gigi

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Dr Ben Marsh 💙 @bendymarsh

5 years ago

Dear @trishgreenhalgh You have inexplicably blocked me on Twitter, despite no interactions. As Doctor interested in Chronic illness, rehab, postviral syndromes & #MECFS I followed u to read your expertise & follow wider debate re rehab for post viral states Please reconsider

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Jessica Taylor-Bearman @jayletay

5 years ago

They actually decided that BECAUSE I was always positive that I wasn't accepting my situation, that I was hiding from it... So it is quite incredible to think that there are still people suggesting that we are too negative... #MyalgicE (2/2)

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Dan Wyke 🦠➡️🧠🔥 @Dan_Wyke

5 years ago

Not a single properly designed research study has ever been able to find an association between 'positive thinking' and improved outcomes for people with ME/CFS. #pwME #MyalgicE #MEcfs

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ME/CFS News @MECFSNews

5 years ago

Prof. Jonathan Edwards on Paul Garner's recent blog: Let's be straight about this, what he says is the equivalent of saying 'don't listen to all the patients whose cancer has spread and is incurable, they just can't cope, listen to those who got better by stroking crystals'.