Scleroderma Living @SclerodermaL
Welcome to Scleroderma Living online magazine! Live...Laugh...Love! sclerodermaliving.com Joined June 2020-
Tweets75
-
Followers93
-
Following56
-
Likes2
One last gift for my daughter! gofund.me/67c11cd7 #GoFundMe
0
0
1
18
0
Check out this job at Biostasis Technologies: linkedin.com/jobs/view/3588…
Check out this job at Advanced Neural Biosciences: linkedin.com/jobs/view/3588…
I am fundraising for the Epilepsy Foundation of America for my 5 year old grandson who has a severe form of epilepsy called Lennox Gestaut Syndrome (LGS). I am doing the Walk to End Epilepsy on May 6th, 2023 in Washington D.C. Please donate! donate.epilepsy.com/index.cfm?fuse…
Empire State Building is purple, green, blue and pink for Rare Disease Day! Picture from my living room window. #curescleroderma #scleroderma #cureepilepsy #lennoxgastautsyndrome
Do you want to work smart, work when your illness allows you without worrying every time you have a flare? Review this 100% Free Course to create another income stream, 90minuteaffiliatechallenge.com/?fpr=fw4lmhttp…
Israeli researchers find potential answer to deadly autoimmune disease flip.it/HB-dxh
US offers residents 4 free at home COVID-19 test kits ordered via the post office: special.usps.com/testkits
Coronavirus (COVID-19) Update: FDA Authorizes New Long-Acting Monoclonal Antibodies for Pre-exposure Prevention of COVID-19 in Certain Individuals | FDA fda.gov/news-events/pr…
Are you overwhelmed by Scleroderma? Juggling jobs, spouses, kids, parents, healthcare, chores! Do you need HELP!!!!!? Michael Benjamin, a Scleroderma survivor, has put together Workshops to help you juggle these challenges. Check out his workshops: michaelfbenjamin.com/group-workshop…
Microneedle Patch Delivers Oxygen to Chronic Wounds | Medgadget medgadget.com/2021/09/micron…
Checking these out for my daughter who is getting engaged soon. Shh, not announced yet. ;-) Amazon Wedding Registry amzn.to/3r0SyH9 Amazon Baby Registry amzn.to/3r2AxYK
Been checking out some Amazon Services. I like these so far. Check out Amazon Prime Wardrobe amzn.to/2TQy9sh Check out Personal Shopper by Prime Wardrobe amzn.to/3hvJhn3 Check out Audible Premium Plus and Get Up to Two Free Audiobooks amzn.to/3e6Wh0F
Coronavirus vaccine effective on autoimmune disease patients, study finds flip.it/0zfXyE
Systemic sclerosis accurately screened on laptop | The Engineer The Engineer theengineer.co.uk/systemic-scler…
Why aren't people good at thinking just for fun? - Futurity futurity.org/daydreaming-pl…
My experience getting my first dose of vaccine at the Javits Center in NYC was efficient, National Guard and NY State Police men/women were professional, knowledgeable, courteous & helpful. Done & out in 30 minutes. Thank you! @NYGovCuomo @nyspolice @NationalGuardNY
Understanding Medical Research: Your Facebook Friend is Wrong | Coursera coursera.org/learn/medical-…
Understanding Clinical Research: Behind the Statistics | Coursera coursera.org/learn/medical-…
Happy Holidays to everyone around the world from Scleroderma Living! #scleroderamliving #scleroderma
RC @Only1RC
12 Followers 182 Following
ClinRheumatol @ClinRheumatol
8K Followers 3K Following Clinical Rheumatology - Journal of the International League of Associations for Rheumatology 2024 Impact Factor: 2.8 Editor-in-Chief: Prof. Adewale Adebajo
ScleroCare @ScleroCare
6 Followers 78 Following 🌿 Empowering Scleroderma Patients 🌟 📚 Education | 💡 Resources | 🩺 Support 🔗 Explore more: https://t.co/u7Mm1lZk0w
No Truffe😷💉💉... @NoTruffe
482 Followers 2K Following 27 ans d'ind. pharma, 25 d'assoc (fin de vie, sos inceste) psy pour toujours, #scléroderm à l'occasion je suis née, je vis....et je mourrai...what else?
Dana Thayer @ThayerDana41668
361 Followers 1K Following
Leenastrong28 @leenastrong28
50 Followers 458 Following 📍Founder Sclerowarriorsg 😷🤒 📍Committee PHSINGAPORE 💉Diagnosed with Systemic Sclerosis since 2009 💉Pulmonary Arterial Hypertension since 2013
Melissa Kindler @MelissaKindler
10 Followers 588 Following
CDNurse2000 @Mshutch25
75 Followers 686 Following
wonder @TNirwani
185 Followers 544 Following
Julie🟧 🟦 @Juliethewarrior
30K Followers 31K Following She/her Stem Cell Transplant for #Scleroderma. #HSCT Live every day like it's your last. #RN #NativeAmerican #Potawatomi #TrailOfDeath #Kickapoo #FuckTrump
Jean @Jean42196333
4 Followers 117 Following
Mariachiara Vasile @unsorrisoraro
30 Followers 776 Following
Faye Smiley-Aakre @Smileyaak
16 Followers 451 Following
Lar @LaurieRutland
64 Followers 2K Following
Jess Fares @Cure_Cole
2K Followers 2K Following Mom to Cole, diagnosed with #SYNGAP1. Working hard with @curesyngap1 to improve lives of those with #epilepsy #SIB #autism #hypotonia #ID and their families!
Hi, It's me @JyotiBudhatho10
18 Followers 252 Following Surviving systemic scleroderma with Taylor Swift’s music folklore, Speak Now, & evermore heal me, her lyrics break me, yet make me whole again. #Fearless
Cureus Rheumatology @CureusRheum
467 Followers 2K Following The Cureus Journal of Medical Science | #OpenAccess, #PeerReview | Rheumatology Specialties | @CureusInc
Raffaella Gallo @RaffaellaGallo_
350 Followers 1K Following Cell biologist. @Fondaz_Veronesi Postdoctoral Fellow at UMG, Catanzaro 🇮🇹 - PhD from @pelkmanslab , University of Zurich🇨🇭
Erika Luna-C @erikalunac
46 Followers 688 Following retired/teacher on hiatus, raising young men with my Bombon, doing my best to stay present, vulnerable & curious-keeping my moon in scorpio in check 😉 ya dig?
mukesh joshi @mukeshj27113517
34 Followers 319 Following
MELISSA @MELIBELI77
44 Followers 1K Following Mother to 3 beautiful children. I live day by day trying not to think about tomorrow because tomorrow is never promised to us.
Carla Claybrooks @ClaybrooksCarla
4 Followers 77 Following
Yetunde toh cute @Yetunde55592207
43 Followers 159 Following smile heals me off when I smiles my nerves are happy with me #smileshealsmeoff
EUSTAR @EUSTAR_org
1K Followers 150 Following European Scleroderma Trials and Research group - aims to foster the awareness, understanding and research of scleroderma and its management throughout Europe
Chantillies @Chantillies1
0 Followers 20 Following Giving up is not an option. Just when you think I am on my way"out", I get my second.....or my trillion breath, and I am living for another day.
Courtney Perrine @cperrine448
135 Followers 436 Following I’m a fun-loving 30-something that is trying to live her best life while fighting multiple autoimmune diseases and chronic conditions. Wife. Mother. Friend.
Shana Hehe @HeheShana
4 Followers 51 Following
Sarah @swagger372
2K Followers 2K Following Mom of 3• Divorced• #Chicago•#MiamiU•#Northwestern•Fighting #Scleroderma/#RA/#Lupus/#Raynauds/#POTS
Angela Tam @ATangelatam
39 Followers 178 Following Scientist, research fellow interested in fibrosis, systemic sclerosis, immunology @UCLscleroderma | Early Careers Network Committee Co-Chair @domearlycareer
NIKKI (NOVICIC) LATIM... @6669NIKKI
606 Followers 3K Following #JUSTICEFORSARA #SARAFAYELATIMER 8/10/1989~5/10/2022 BRUTALLY HONEST, LUV MUSIC, I HAVE SCLERODERMA, HAD A STEM CELL TRANSPLANT & I'M A SURVIVOR..SO FAR!
Consejos de Reumatolo... @ConsejosReumato
3K Followers 5K Following Alfredo Berrocal-Kasay MD, Reumatólogo/Rheumatologist, Lima-Perú
Cindy Diaz @Sis_Que
0 Followers 13 Following
SclerodermaAustralia @ScleroAus
75 Followers 94 Following Scleroderma Australia has been incorporated since 2005 to facilitate a national representative voice in supporting our scleroderma community across Australia.
Six stars @Sixstargirl
26 Followers 388 Following
Sick With Optimism @OptimismSick
174 Followers 431 Following Journey with #ChronicIllness #Scleroderma #SSc #TMA #AutoimmuneDisease #CKD on #TPE - sharing info, opinion & #optimism; hoping to help others along the way☺️
Living with Scleroder... @claudia_sultan
23 Followers 145 Following Author of A life with Uncertainty 📚 BSci Psychology 🎓 Scleroderma Survivor 🌻 Interstitial Lung Disease Warrior 🦋 Follow my journey
World Scleroderma Fou... @Worldsclerofnd
2K Followers 327 Following The World Scleroderma Foundation is a non-profit, non-governmental foundation based in Switzerland, promoting scleroderma research and supporting patients.
patricia@patriciamace... @patriciareumato
4 Followers 34 Following Médica reumatologista; mãe de 2 amores; casada de fato e com amor; apaixonada por viagens, culturas e livros; defensora do direito feminino de liberdade ❤️
Tammy Ayotte @lunchgardenlady
208 Followers 454 Following * School Nutrition Specialist * School/Community Garden Advocate * Promoter of #HeadHeartHealth for all *
Rhonda Moyer Dearth @MoyerDearth
30 Followers 752 Following
Jade @JadeScleroderma
495 Followers 506 Following Diagnosed with diffuse Scleroderma in 2011. Since then I've also developed Raynaud's, Interstitial Lung Disease, and Acid Reflux. And I'm alive and well.
Bram Sable-Smith @besables
2K Followers 2K Following Midwest thangs @KFFHealthNews. Funky diabetic. rt≠e, likes≠like, like like. Tips: [email protected]
Peter Morley @morethanmySLE
145K Followers 11K Following ♿️ Patient Advocate-Cancer Survivor & Lupus Warrior; Testified 3x before Congress ; @AppropsDems/ @OversightDems/@EnergyCommerce
Anik Singal @aniksingal
13K Followers 99 Following Founder @ UgenticAI & ExpertScale | Investor in AI & Martech SaaS | Scaling Expert – Sold $100M+ Online | Showing how I use AI to build & scale businesses here!
Jerry Seinfeld @JerrySeinfeld
3.9M Followers 114 Following The Comedians In Cars Getting Coffee Book is available now!
Yuval Cohen @CEOCorbus
2K Followers 893 Following I'm the CEO of @CorbusPharma ($CRBP). I'm passionate about inflammatory/fibrotic/metabolic diseases and cancer. These opinions are my own.
Alaa Eddin @EddinAlaa
66 Followers 295 Following Scleroderma Warrior Spreading Scleroderma Awareness Sclero Coach PSS & PFA Trainer
Mia Maestro @miamaestro
34K Followers 518 Following
Mo Wheeler @MoWheeler3
7 Followers 99 Following I'm the mother of a way cool young woman, now wife n mother! couldn't be any more proud! Just stay home almost 365 n chill. Can't do much else with Scleroderma!
Global Genes @GlobalGenes
29K Followers 6K Following Empowering the Next Generation Rare Disease Advocate. Merged with RARE-X Dec. 2022. #CareAboutRare
Corbus Pharma @CorbusPharma
6K Followers 2K Following Committed to leveraging expertise in immunology to fulfill purpose of developing innovative new medicines that improve lives (NASDAQ: $CRBP)
Runway of Dreams @RunwayOfDreams1
2K Followers 899 Following A non-profit organization that works toward a future of inclusion, acceptance and opportunity in the fashion industry for people with disabilities.
Open Style Lab @OpenStyleLab
2K Followers 851 Following We’re a non-profit that makes style accessible to people of all abilities. ♦️ Created: HackAbility ToolKit ♦️ Read our monthly research journals 👇
Lauren “Lolo” Spe... @itsLOLOlove
3K Followers 373 Following Disability is my Lifestyle♿️ Actress/Model/Advocate 👑Founder of Sitting Pretty Prod. 📺Jocelyn on @sexlivesonmax 🎬Indie Spirit Award Nominee
gimpgirl @gimpgirl
8K Followers 3K Following Supporting the lives of women with disabilities. Meetings Sundays 1 PM PT at https://t.co/xasODgRXD4, and join us at https://t.co/dNeuXcdYeh.
Raynaud's Assn. @raynaudsorg
4K Followers 692 Following The Raynaud's Association is a national non-profit organization providing support and education to the millions of sufferers of Raynaud's Phenomenon.
Scleroderma India @ScleroIndia
538 Followers 287 Following A Charitable Trust and Patient Support Group
UVA Department of Med... @UvaDOM
2K Followers 460 Following Twitter account for the University of Virginia Department of Medicine.
UVA Health @uvahealthnews
12K Followers 4K Following Research news, events and health tips from UVA Health.
bob saget @bobsaget
2.0M Followers 785 Following I like long walks on the beach...and then to be dragged through the sand by an off-road vehicle, and then hurled off a catapult.
RDLA @RareAdvocates
6K Followers 2K Following A program of the EveryLife Foundation committed to growing the patient advocacy community and working collaboratively, thereby amplifying the patient voice!
Lesley Ann Saketkoo M... @SaketkooMD
288 Followers 301 Following #BLM 💜always. Interstitial lung disease, fibrosis,pulmonary hypertension, scleroderma, sarcoidosis, RA-ILD, myositis, patient-centered research & interventions
Virginia BME @UVABME
2K Followers 246 Following Here are all the good things that come from great research in the Department of Biomedical Engineering at the University of Virginia.
UVA Engineering @UVAEngineers
6K Followers 1K Following University of Virginia School of Engineering and Applied Science
Amanda LJ @AccessibilityLJ
593 Followers 626 Following Accessibility Inclusion Consultant. President Scleroderma Victoria & Australia. Bilateral Amputee & person with Scleroderma. Views my own.
McGill University @mcgillu
158K Followers 5K Following #McGill: 204 years of great education, excellent research, in service to society.
Boehringer Ingelheim @Boehringer
104K Followers 3K Following Join the conversation on the latest in healthcare innovation from Boehringer Ingelheim HQ. #LifeForward Community Guidelines: https://t.co/d5aGI1ZS8e
jason alexander @IJasonAlexander
663K Followers 303 Following Kindness, decency, humanity, empathy, curiosity and the desire to laugh just a little bit - let’s try for those and see if we make the world a little better
CreakyJoints.org @CreakyJoints
18K Followers 2K Following Digital community for millions of arthritis patients and caregivers worldwide. Part of @GHLForg | [email protected]
Juan Ovalles MD, PhD @DrJuanOvalles
4K Followers 634 Following #RheumaTwitter 🐦 about #Sjögren's, #Scleroderma, 🤰 & Rheumthings | #SoMe Editor for @SEReumatologia | Living in Calderon de la Barca's Hometown 🇨🇴 🇩🇴
Dr. Dinesh Khanna @sclerodermaUM
3K Followers 90 Following 👉University of Michigan Scleroderma Program leading the way through excellence in clinical care, teaching, & research #scleroderma tweets≠advice Follow≠endorse
Ashima Makol MD @AshimaMakol
3K Followers 547 Following Rheumatologist, Assoc Professor & Vice Chair @MayoClinic Rochester #Scleroderma #Raynaud's #Capillaroscopy #MSKUS, Mom, Foodie, Traveller. Tweets are my own.
Jay Mohan, D.O., FACC... @DrJayMohan
16K Followers 840 Following ❤️CardiologyOnCall 📚Educator #CardioX enthusiast🖐🏽posts= opinion/not medical advice. not affiliated with MHC. follow me on IG: @cardiologyoncall
Scleroderma Phils @SclerodermaPhil
404 Followers 23 Following Scleroderma Philippines, a nonprofit patient organization which aims to promote patient education and raising public awareness of Scleroderma.
EUSTAR @EUSTAR_org
1K Followers 150 Following European Scleroderma Trials and Research group - aims to foster the awareness, understanding and research of scleroderma and its management throughout Europe
World Scleroderma Fou... @Worldsclerofnd
2K Followers 327 Following The World Scleroderma Foundation is a non-profit, non-governmental foundation based in Switzerland, promoting scleroderma research and supporting patients.
American College of R... @ACRheum
35K Followers 4K Following Global medical society providing education, research, advocacy, and practice management support to over 10,500 rheumatology professionals since 1934.
EULAR @eular_org
22K Followers 1K Following The European Alliance of Associations for Rheumatology. The registration for #EULAR2024 Congress is now open!
Scleroderma Victoria @scleroderma_vic
386 Followers 158 Following Supporting the Scleroderma Community in Victoria
SuperStarz38 @skindeep217
128 Followers 294 Following Patient Advocate,SPIN, Steffens Board Member, SYNC Creator,CoFounder of The Waiting Room Entertainment
Scleroderma Society o... @scleroderma_sso
2K Followers 2K Following We are committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma. #scleroderma #autoimmunedisease
SclerodermaRF @SclerodermaRF
887 Followers 937 Following Scleroderma Unit @royalfreenhs Tweets by long term #dcSSc patient, Nicola Whitehill, volunteer https://t.co/b5D1YSUThT
SRUK | Scleroderma & ... @WeAreSRUK
5K Followers 1K Following Scleroderma & Raynaud’s UK is the only charity dedicated to improving the lives of people affected by scleroderma and Raynaud’s.
Scleroderma Framed @Scleroframed
732 Followers 315 Following Gives more awareness for scleroderma in a positive and artisitic manner
National Scleroderma ... @SclerodermaTS
780 Followers 184 Following We strive to raise awareness, support #scleroderma patients and raise funds for a #cure. https://t.co/VclqavsAxC
National Scleroderma ... @SclerodermaCO
870 Followers 128 Following The National Scleroderma Foundation was founded to advance medical research, promote disease awareness, and provide support to people with scleroderma.
Scleroderma Canada @SclerodermaCAN
3K Followers 2K Following Scleroderma Canada is committed to promoting public awareness, supporting those affected by Scleroderma and funding research to find a cure.Trends for United States
180 B posts
10,9 B posts
1.492 posts
17,8 B posts
5.456 posts
20,8 B posts
48,9 B posts
1.373 posts
38 B posts
5.650 posts
129 B posts
18,1 B posts
1.068 posts
4.399 posts
You might like
Scleroderma News
@SclerodermaNews
1K Followers
World Scleroderma Fou...
@Worldsclerofnd
2K Followers
Scleroderma Framed
@Scleroframed
732 Followers
SclerodermaRF
@SclerodermaRF
887 Followers
Scleroderma Canada
@SclerodermaCAN
3K Followers
Scleroderma Victoria
@scleroderma_vic
386 Followers
JCR: Journal of Clini...
@JRheumatology
7K Followers
The Journal of Rheuma...
@jrheum
12K Followers
SclerodermaAustralia
@ScleroAus
75 Followers
John
@sclerojohn
221 Followers
SRFCure
@srfcure
3K Followers