Long Covid Apheresis Community @ApheresisLC
A community dedicated to apheresis for long covid, post vac syndrome and chronic illnesses. Join us: https://t.co/OSTWCUMUdV lcacommunity.org Joined July 2021-
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In our facebook group we hear dozens of the same experiences about recovering at the Apheresis Center in Cyprus facebook.com/groups/longcov… and the clinic also has a section with testimonials: apheresiscenter.eu/testimonials
In our facebook group we hear dozens of the same experiences about recovering at the Apheresis Center in Cyprus facebook.com/groups/longcov… and the clinic also has a section with testimonials: apheresiscenter.eu/testimonials
@Avojules @resiapretorius I remember my apheresis needle blocking due to debris ,you didn’t need a microscope! And all the apheresis patients had very different amounts of debris in the plasma bottle . World wide pandemic ,so money should be pouring in - research tissue hypoxia ,HELP Apheresis for #ME
@T14TT2 @vejon_health Volition is trying to NETs approved as a clinical prognostic, and many are working on drug treatments for persistently elevated NETosis. I prefer they first expand HELP apheresis availability since there are many patient testimonials of success and safety. volition.com/nu-q-nets/
I you have not already subscribed to the Apheresis Center's blog, we highly recommend to. Today we got another post notification in and it is a great read explaining various apheresis types in simple terms: apheresiscenter.eu/h-e-l-p-aphere… #HelpApheresis #LongCovid #PostVac
We reaffirm that SARS CoV2 can persist for life This is what happened in this case in which it will persist indefinitely With various antivirals and procedures such as Ozone, HELP Apheresis... the infection can be controlled and go into a state of Latency x.com/aguirre1gustav…
We reaffirm that SARS CoV2 can persist for life This is what happened in this case in which it will persist indefinitely With various antivirals and procedures such as Ozone, HELP Apheresis... the infection can be controlled and go into a state of Latency x.com/aguirre1gustav…
@cojehp @C_Scheibenbogen @BeateJaegerMD I know two sufferers personally who worsened after IA. I know a few who benefitted more or less from HELP-apheresis.
@MEAssociation @itvnews The ME Association has played down a treatment me & others have benefitted from (HELP Apheresis) but talks positively about nonsense like this. The Assoc isn't pulling up trees for ME suffers but has become part of the inercia holding us back. Needs radical overhaul or replacment
@VirusesImmunity @wnpr @wherewelive @LisaAMcCorkell @patientled We need more research for apheresis as the most promising therapy in Long COVID
@LongCovidHell H.E.L.P. apheresis benefitting many long COVID-19 PASC patients in Europe. lnkd.in/ehgP4x6A
@toobaffled I had 4 HELP apheresis treatments in Germany to clean my blood. Best thing I ever did!
Alright, alright, alright! Is this the possibly coolest blog post of the year 2024 in the Long Covid/Post Vac/Chronic Illness world so far? Superwomen - yessssss! Supercharging Treatment - Health Coaching and Clinical Nutrition apheresiscenter.eu/f/superchargin…
@JhDesignbyJill Take him to Cyprus and get HELP apheresis as soon as possible. If you do it early it will work
@healingfromlc @mountainkeep I can only recommend to try HELP apheresis and Triple Therapy. It improved my interstitial Problem by removing Micro clots and reduce platelet hyperactivation.Therefore you have to check if Clotting is involved. Its No magical cure and TT is Long Term but can actually de-escalate
The Apheresis Center in Cyprus is indeed impressive!
The Apheresis Center in Cyprus is indeed impressive!
@healingfromlc HELP aphereis was amazing for me. I’m pretty well these days, but I remember when I was quite sick I was willing to try anything and everything, so I admit I don’t understand the people who select ‘neither’
@aminltf98 Help apheresis was great for everything incl. brain fog in my experience.
@vejon_health H.E.L.P apheresis continues to help many in Europe according to their own patient testimonials. They don't propagandize at this clinic and don't care if the patients think they were injured by the viral infection, vaccination or a combo of both. Empathy! 🩷apheresiscenter.eu
Wichtiges Review! Aktivierende Therapie bei POTS hat gute Evidenz - aber nicht bei POTS im Kontext von Post Exertional Malaise (also bei ME/CFS), Hypermobilität. Falsche Aktivierung bei PEM führt zu Schaden. Siehe auch Vortrag von @PutrinoLab gestern. autonomicneuroscience.com/article/S1566-…
MEDICINE. Medicines e.g. research-based pharmaceuticals, & medical interventions e.g. blood apheresis, are what made the biggest differences. (AND more research is needed) Exercise & movement are a natural consequence of improved baseline. Stop prescribing exercise to #pwME 2/2
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Claudia Ellert @claudia_ellert
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@AndreasMailer @ApheresisLC @ml_pdh @Hottekoeln @realfrankbecker @FrauXausNRW @neurostingl Gute Frage. Es muss im Rahmen von Studien getestet werden, in der Regel an Unikliniken
@ApheresisLC @LongCovid Yep that’s me - not a bot I promise! Although that was at 6am in the morning. I do look a bit better later on in the day I assure you.
This treatment should be available as a treatment for #LongCovid all over the world..
Imagine your 13-year-old goes from completely healthy to disabled without being able to walk within a short period of time. Ryan Sobey, a South African scientist talks about his son's recovery from Long Covid with Combination Therapy and Help Apheresis: youtube.com/watch?v=wqyV5D…
A reason it’s not a good idea to Twitter diagnose bacterial pneumonia aftermath as Long Covid? Because it’s common for it to take months to recover from *any severe pneumonia*, but many do and often with exercise. Is that the LC narrative patients need? Anyway, from this week.
@ApheresisLC Then perhaps you need a new rule "Researchers only allowed if they have published papers in the biomedical approach and adhere to the scientific method in all that they do. Researchers who advocate for pseudoscience not welcome here."---which disqualifies Paul Garner toute suite
@MAbsoud I had this treatment for #longcovid. The Drs found my D Dimer was 37 times higher than the normal range. No one bothered to test this here in the UK. GP told me I 'just' had Long Covid. A and E sent me home. Long Covid clinic did nothing. Apheresis got me out of my wheelchair.
@MariaSale8 @ApheresisLC @JohannaBorde @resiapretorius History is against this; when someone has an idee fixe it's hard to change. Ben Goldacre: "It's hard to argue someone logically out of a position into which they did not argue themselves logically". Trump supporters pertain.
@ApheresisLC @BuckerGunnar Next couple of months not terribly good, but maybe @resiapretorius would be able to?
@Paula_JKnight @JohannaBorde @ApheresisLC @resiapretorius They have no idea and care less, it would seem...
@dbkell @TeamPostX @JohannaBorde @ApheresisLC @resiapretorius I really hope this means they have scored an own goal on this one.
@TeamPostX @JohannaBorde @ApheresisLC @resiapretorius See our rebuttal (when it is published); awaiting journal's response...
@dbkell @JohannaBorde @ApheresisLC @resiapretorius Both methods are well established standard in clinical everyday bussiness, so I can’t wrap my head around the fact that they are used as synonyms in the cochrane review on PASC. Imagine a patient with Lp (a) getting plasmapheresis instead of HELP apheresis. Case of malpractice.
@SammieFMc @SarahOC_MECFS @LongCovidKids Visiting the Apheresis Center for HELP for Liz. Hoping for just improvement on base line. Desperate times. 🤞
@ApheresisLC @healingfromlc I was happy to find out that they offered telemedicine including diagnostic and prescriptions. That would be amazing. I hope it would be still possible.
@xandvt And I've just caught up with this item on LongCovid with Joanna Herman (at 18 mins). However, I feel uncomfortable with this continuing demonisation of HELP apheresis. #NotAScam @resiapretorius x.com/long_covid/sta…
This will be an interesting watch. BBC1 10am BST Wednesday 26 April. Dr Xand's Con or Cure - Scammers cashing in on #LongCovid. @xandvt bbc.co.uk/programmes/m00…
@_Lucibee @xandvt @resiapretorius Yes, I remember commenting on their attitude towards HELP apheresis. Those hit pieces by the bmj & itv have made things so much worse.
@LongHaulWiki It’s the truth. I can confirm the results. Great work with new hope for several post viral syndromes. But we need more research and more trials!
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