SC Chapter @SCscleroderma
Joined September 2015-
Tweets96
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Followers115
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Following96
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Likes25
For this year's #SclerodermaAwarenessMonth in June, you can raise vital funds and awareness for those living with Scleroderma and Raynaud's by participating in our #SRUKWalk. Choose your distance and your own route, plus you'll get a medal! Sign up now: bit.ly/3fsNJCl
Don’t forget to register for the 2022 Virtual Amy K. Parrish Scleroderma Patient Education Conference! The last day to register will be Feb. 10, and the Zoom link will be sent Feb. 9. Register by emailing [email protected]. We hope to see you there!
Join us for the 2022 Virtual Amy K. Parrish Scleroderma Patient Education Conference! The last day to register will be Feb. 10, and the Zoom link will be sent Feb. 9. Register by emailing [email protected]. We hope to see you there!
During the Path to a Rare Diganosis Panel, advocates shared their experience getting their diagnosis and living with a rare autoimmune disease. Watch the recording now! ow.ly/LTgZ50H3cEl #raredisease #autoimmunedisease
We've had a great day 2 of the 2021 Virtual Amy K. Parrish Scleroderma Patient Education Conference! Thanks so much to everyone who attended, and a special thank you to our speakers: Dr. Richard Silver, Dr. Faye Hant & Dr. Carol Fegahli-Bostwick!!
We had a great turnout for day 1 of our first virtual Amy K. Parrish Scleroderma Patient Education Conference! Thanks so much to all who attended, and a special shout out to our guest speakers today, Dr. Silver with MUSC and Robert Riggs, CEO of the @scleroderma!
Don't forget to register for Day 2 of our Virtual Amy K. Parrish Scleroderma Patient Education Conference! Register here: eventbrite.com/e/2021-amy-k-p… @scleroderma
Registration is open for the first day of our virtual 2021 Amy K. Parrish Scleroderma Patient Education Conference. Hear from our chapter leaders, the CEO of Scleroderma Foundation Robert Riggs, and from Dr. Richard Silver with MUSC. Register by Feb. 8: …rodermaconferencefeb13.eventbrite.com
Save the dates for our virtual 2021 Amy K. Parrish Scleroderma Patient Education Confernece: Feb. 13 & 20! Registration coming soon!
Dr. Carol Feghali-Bostwick and the researchers in her her Scleroderma research lab at MUSC are showing off their Scleroderma Foundation masks. Dr. Fegahli-Bostwick says "Thank you to the Scleroderma Foundation South Carolina chapter and Susan Francis Melvin for our masks."
Today, our treasurer, Frances Parrish, walked with her horse Grace in honor of her mom, Amy Parrish. Today is the last day of our virtual walk,but there's still time to walk/donate! Let's challenge ourselves to raise $514 to reach $21,000! Donate at scleroderma.org/steppingouttho….
Thanks so much Bobby Francis for #SteppingOutToCureScleroderma on the disc golf course this week for our virtual fundraiser! There's still time to donate at scleroderma.org/steppingouttho….
@SCscleroderma Team Marti's Wings, honoring the memory of Marti Engle, stepped out to cure scleroderma on Saturday! So far, Team Marti's Wings has raised $2,140 toward a cure!
Thank you to those who have helped us raise over $20,000 for the 6th Thomas Mille Memorial Virtual Stepping Out to Cure Scleroderma event. Let's see if we can reach $21,000! Donate at scleroderma.org/steppingouttho…. Don't forget to tag us while you're out & about, walking, running, etc.
@SCscleroderma Thank you to John Houser for Stepping Out to Cure Scleroderma!
Yesterday, we had Team TTomTough and Team Susan's Angels walk the Timmerman Trail in Cayce, SC for our virtual Thomas Mills Memorial Stepping Out to Cure Scleroderma.
Tomorrow is the start of our 6th Thomas Mills Stepping Out to Cure Scleroderma 5K Run and Walk! This year we have gone virtual, and our walk will be held from tomorrow until Sept. 30. We hope you'll join us tomorrow at 12:30 as we kick off our fundraiser via Facebook Live!
The COVID-19 Pandemic can't stop us from holding our annual fundraiser...so we went VIRTUAL! Join us from your driveway, on a hiking trail, on your bike, on a horse, from Sept. 19-30 & show us how you're #SteppingOutToCureScleroderma Register by Sept. 19: scleroderma.org/steppingouttho…
The world has been through much in this first half of 2020, yet at SRF, we’re committed to forging ahead with you, our scleroderma community, to accelerate the pace of research — and we're doing so in many exciting ways. Read more conta.cc/31I9YNZ
You won’t want to miss this webinar with Dr. Farrell! @SclerodermaCAN @WeAreSRUK
ClinRheumatol @ClinRheumatol
8K Followers 3K Following Clinical Rheumatology - Journal of the International League of Associations for Rheumatology 2024 Impact Factor: 2.8 Editor-in-Chief: Prof. Adewale Adebajo
Serprena Grant @serprena
72 Followers 622 Following
Melissa Kindler @MelissaKindler
10 Followers 588 Following
CDNurse2000 @Mshutch25
75 Followers 686 Following
Hi, It's me @JyotiBudhatho10
18 Followers 252 Following Surviving systemic scleroderma with Taylor Swift’s music folklore, Speak Now, & evermore heal me, her lyrics break me, yet make me whole again. #Fearless
Dr Rheum @rheumdoctor
2K Followers 3K Following Tweets are opinions of Homi the Homunculus' joint activity and does not represent the opinion of anyone else
Shailza Sharma @shailzashail
38 Followers 169 Following PhD Glycobiology Postdoc at Medical University of South Carolina
MELISSA @MELIBELI77
44 Followers 1K Following Mother to 3 beautiful children. I live day by day trying not to think about tomorrow because tomorrow is never promised to us.
IPCWell - Dr. Buffy L... @IPCWell
220 Followers 622 Following IPCWell and Dr. Buffy is devoted to mitigating infectious diseases in long-term care and supporting the heroic and dedicated staff!
Prof. Vasiliki Liakou... @VLiakouli
34 Followers 128 Following Department of Precision Medicine, Rheumatology Unit, University of Campania, Naples - Italy
Courtney Perrine @cperrine448
135 Followers 436 Following I’m a fun-loving 30-something that is trying to live her best life while fighting multiple autoimmune diseases and chronic conditions. Wife. Mother. Friend.
Scleroderma Kids @SclerodermaKids
26 Followers 24 Following Did you know that Kids Get Scleroderma, Too!? Learn more and be sure to check out our coloring book at 👇 #sclerodermakids #kidsgetsclerodermatoo
Tyler Moss @Mossquito80
17 Followers 196 Following
Living with Scleroder... @claudia_sultan
23 Followers 145 Following Author of A life with Uncertainty 📚 BSci Psychology 🎓 Scleroderma Survivor 🌻 Interstitial Lung Disease Warrior 🦋 Follow my journey
No Truffe😷💉💉... @NoTruffe
482 Followers 2K Following 27 ans d'ind. pharma, 25 d'assoc (fin de vie, sos inceste) psy pour toujours, #scléroderm à l'occasion je suis née, je vis....et je mourrai...what else?
mila kidas @MilaKidas
3 Followers 41 Following
Mailze Campos @MailzeC
54 Followers 189 Following Médica assistente do Serviço de Reumatologia da UFC e do Serviço de Reumatologia do HGF. Doutora em Reumatologia pela USP.
Crissy Spadorcia @crissyspadorcia
54 Followers 308 Following
Jenny Phillips @JennyPh15334965
7 Followers 99 Following Money Expert. medical providers, entertainment industry, special needs Entrepreneur Mother of a child with special needs
Deejay Touch12 @NongiVerdy
14 Followers 137 Following
Linda Clark @LindaCl38822628
5 Followers 24 Following
terri trulock @T5Terri
115 Followers 186 Following
Zak Karsan @ZakKarsan
58 Followers 94 Following
SuperStarz38 @skindeep217
128 Followers 294 Following Patient Advocate,SPIN, Steffens Board Member, SYNC Creator,CoFounder of The Waiting Room Entertainment
Melissa J. Farris Sim... @melissajfarris
1K Followers 3K Following Mom, teacher, book lover, and hopeless romantic. Southern middle Tennessee native.
Best Medicine @bestmedicinepat
32 Followers 118 Following An annual comedy event, benefitting @SRFcure, in memory of Patricia Connors-Zini ♥️
Juliana Viscardi @ViscardiJuliana
29 Followers 93 Following Advocate💫Researcher💛Publiscist✌Blogger🗣 Volunteer 🌻 Scleroderma Foundation 💚💙 Pulmonary Fibrosis Foundation Dog Lover🐶 Abandonment Survivor
Vanessa Cerrone @EventDesignerV
220 Followers 987 Following Event Project Manager | Sustainability-Minded | President, Butterfly APS-Committed to the rare diseases patient community
SCM1959 @SCM19591
1 Followers 46 Following
mrnmrsstoners @mrnmrsstoners
27 Followers 1K Following
La Chandra @ChoiceisYors
0 Followers 73 Following
Bryan Smith @Bs1865Me
67 Followers 323 Following Secretary-Treasurer Ashland area Labor Council , Board of Directors MCCU
Dr Giggles @pagingdrgiggles
300 Followers 997 Following Australian doctor. Berlin based. Lover of emergency medicine and summer. i love my cats my crypto and McLaren F1
IFFGD @IFFGD
4K Followers 793 Following Our mission: to support, inform, and assist people with digestive disorders. 2022 NES: https://t.co/5MlMuvCLsM
Janis Hoffman @jbh0608
3 Followers 16 Following
Roham Zamanian @docroham
1K Followers 629 Following Professor of Medicine ; Director Adult Pulmonary Hypertension Program ; Associate Director Vera Moulton Wall Center; clinical trialist ; photographer.
Manfred Elsässer Dr. @DrElsaesser
18 Followers 47 Following
National Scleroderma ... @sclerotxchapter
330 Followers 98 Following National Scleroderma Foundation Texas Bluebonnet Chapter
Stephanie Moon @smslmoon
2K Followers 2K Following Studying RNA regulation in stress & neurological disease. Assistant Professor at University of Michigan @umichrna @UM_Genetics @NIH_LRP #raredisease
Scleroderma Nigeria @Scleroderma_ng
108 Followers 130 Following Scleroderma Nigeria is committed to raising awareness about scleroderma.
Forbius @Forbius_
100 Followers 296 Following Forbius is a clinical stage protein engineering company that designs, develops & commercializes biotherapeutics for the treatment of cancer & fibrotic diseases.
kamalsolanki@hotmail.... @kamalsolankiho1
1 Followers 22 Following
Scleroderma Fndtn Hea... @SclerodermaFou1
16 Followers 18 Following The Heartland Chapter serves IA, KS, MO, ND, NE & SD. We conduct support groups, education events, and fund raise for Scleroderma research.
Scleroderma Fndtn GW @SFGWDC
219 Followers 76 Following Scleroderma Foundation Greater Washington, DC Chapter is a nonprofit for people with scleroderma, their families & friends. Disclaimer: https://t.co/JdrgscnAYd
Clemson University Pu... @ClemsonSafety
9K Followers 92 Following Official account for CU Alerts and Clemson University Public Safety, including Police, Fire & EMS and Emergency Management. Call 911 for emergencies.
Autoimmune Associatio... @AutoimmuneAssoc
6K Followers 2K Following Leading the fight against autoimmune disease by collaborating to improve healthcare, advance research, and support the community.
SclerodermaRF @SclerodermaRF
887 Followers 937 Following Scleroderma Unit @royalfreenhs Tweets by long term #dcSSc patient, Nicola Whitehill, volunteer https://t.co/b5D1YSUThT
terri trulock @T5Terri
115 Followers 186 Following
Stephanie Moon @smslmoon
2K Followers 2K Following Studying RNA regulation in stress & neurological disease. Assistant Professor at University of Michigan @umichrna @UM_Genetics @NIH_LRP #raredisease
Global Scleroderma In... @globalsclero
291 Followers 924 Following The Global Scleroderma Initiative, Integrating new technologies into the Scleroderma healthcare ecosystem.
Mary Blades @meblades1141
52 Followers 84 Following
peggy gentry @PalbertPeggy
27 Followers 169 Following
PHsurvivor @PHsurvivor92
142 Followers 224 Following Pulmonary Arterial Hypertension Long Term Survivor, https://t.co/ZOpLgcz1WF; Admin/Mgr, St. of California, ret.
Serena Lawrence @wrshpndtrbt
382 Followers 580 Following Tea snob located in Canada. Boston Terrier mama & bubble bath queen. Senior Managing Columns Editor, who just happens to have pulmonary hypertension.
Abigail Jarrett @lucero410
185 Followers 134 Following Idiopathic Pulmonary Arterial Hypertension (IPAH) DX: 5/5/2008, Lupus, Hypersensitivity Pneumonitis. I.V. Remodulin, Adempas, Letairis, Oxygen 24/7...
Blue Lips Foundation @BlueLipsORG
577 Followers 774 Following Blue Lips Foundation was established to fund research for early detection of Pulmonary Hypertension.
JSRD @JScleroderma
621 Followers 556 Following The Journal of Scleroderma and Related Disorders (JSRD), the official independent journal of the World Scleroderma Foundation & EUSTAR published by Wichtig
Ann Havelock @sclerolady
554 Followers 1K Following Central Oregon Scleroderma Support Group raising awareness of Scleroderma associating color of teal to Scleroderma like pink is to breast cancer.
Annelise Roennow @frk_bibo
352 Followers 426 Following Media manager of Federation of European Scleroderma Associations. Fun, loving, aunt, have scleroderma, librarian.
Fesca @Fscleroderma
1K Followers 245 Following Federation of European Scleroderma Associations aisbl is working to make scleroderma a well-known disease.
National Scleroderma ... @sclerotxchapter
330 Followers 98 Following National Scleroderma Foundation Texas Bluebonnet Chapter
SclerodermaAwareness @__Scleroderma__
210 Followers 96 Following Scleroderma is a Rare Autoimmune Disease. There is no cure.
Scleroderma Victoria @scleroderma_vic
386 Followers 158 Following Supporting the Scleroderma Community in Victoria
Scleroderma_Hun @SclerodermaHun
32 Followers 47 Following
500kStep4Scleroderma @500kScleroderma
30 Followers 24 Following We are walking over 500,000 steps (470 kms) to raise awareness of scleroderma and to raise funds for Scleroderma Australia.
The UPS Store @TheUPSStore
47K Followers 3K Following Does your small business have 💯 things to do? One place can help you pare down that list. It’s time to #BeUnstoppable
sheryl bishop @sheryl_bishop
34 Followers 74 Following
Lynn Steblecki @LynnSteblecki
1K Followers 1K Following Influential woman semi finalist UK Venus Awards,Speaker, Author Prizewinner, “Work in progress” Diamond Drama Diary, Ambassador Scleroderma Charles Wolfson
Wyatt the Warrior @wyattwarrior1
235 Followers 1K Following Wyatt is a 10 yr old who was diagnosed at the age of eight with a rare autoimmune disease Scleroderma. Wyatt does weekly chemotherapy and 10 pills daily.
TOKUGAWA @tvstarr
599 Followers 5K Following
nicola whitehill @cosmicfairy444
619 Followers 1K Following BSc Hons, Barrister in Law non practising. MRSB. ResearchChampion NIHR https://t.co/Pnm79cyMeI #SclerodermaFreeWorld
seamus bogle @seamus_bogle
37 Followers 136 Following
Scleroderma Info @SclerodermaO
667 Followers 1K Following I am transitioning this account to Scleroderma Living @SclerodermaL. Please go to @SclerodermaL and follow us.
Scleroderma Georgia @Scleroderma_GA
367 Followers 25 Following Born March 31, 2011 in Lilburn, Georgia as the first official Georgia Chapter. Support group & chapter contact: 770-925-7037 [email protected]
Brenda Murphy @SCBMW
683 Followers 959 Following @UofSC Gamecock! Darla Moore School of Business alumna. Hartsville native. You're never too old to... #Believer
ClemsonCofEd @ClemsonCofEd
2K Followers 201 Following Clemson's College of Education continually strives to provide transformational educational opportunities and excellence in scholarship.
Clemson CBSHS @ClemsonCBSHS
2K Followers 306 Following Communication; Nursing; PRTM; Political Science; Psychology; Public Health Sciences; Sociology, Anthropology & Criminal Justice
Lynn @sclerwarrior
233 Followers 186 Following No regrets. Your next breath is never guaranteed, live in the moment. #Scleroderma, #PulmonaryFibrosis
Juliana Viscardi @Juli_Viscardi
111 Followers 257 Following Advocate💫Researcher💛Publiscist✌Blogger🗣 Volunteer 🌻 Scleroderma Foundation 💚💙 Pulmonary Fibrosis Foun #PFFDAUGHTERS #pulmonaryfibrosis #SCLERODERMA #FESCA
Health Standards @HealthStandards
19K Followers 4K Following Engaging conversations on healthcare and technology. | Home of the HealthStandards blog on #healthIT innovation #interoperability #FHIR
CMSGov @CMSGov
206K Followers 114 Following Official X account for the Centers for Medicare & Medicaid Services (CMS) | Follow @DrOzCMS
Modern Healthcare @modrnhealthcr
148K Followers 409 Following Award-winning healthcare business news, research and opinion | https://t.co/IqTQOt0NUe (RTs are not endorsements)
Benjamin Thoreau @ThoreauBenjamin
612 Followers 514 Following MD PhD | Internal Medicine & Clinical Immunology | @CHRU_Tours @HUGrandOuest | #Autoimmunity #SSc #ILD #Vasculitis #Rstat
Scleroderma Fndtn GW @SFGWDC
219 Followers 76 Following Scleroderma Foundation Greater Washington, DC Chapter is a nonprofit for people with scleroderma, their families & friends. Disclaimer: https://t.co/JdrgscnAYd
Scleroderma News @SclerodermaNews
1K Followers 675 Following We are dedicated to sharing the latest news, research, and SCL patient perspectives.
WSPA 7NEWS @WSPA7
81K Followers 441 Following The Official page for WSPA-TV 7NEWS. Greenville, Anderson, Spartanburg SC and Asheville, Hendersonville, NC
Scleroderma Awareness... @SclerodermaKC
389 Followers 403 Following Scleroderma Awareness of Kansas City to educate and make people aware of scleroderma in their community.
Elizabeth Oliver @Elizabeth15MK
791 Followers 637 Following Coach’s Wife. Boy Mom. Daughter. Sister. Friend. Marketer + Creator✨Proud @merceryou alum. #gobearsTrends for United States
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