Scleroderma Kids @SclerodermaKids

The 2023 National Scleroderma Conference and Kids Get Scleroderma Too! Conference are right around the corner! Don’t miss out on speakers such as Dr. Suzanne Li, Dr. Katherine Torok, and Erin Raber, MA, MT-BC. Learn more and sign up at scleroderma.org/national-confe…

Does your child have scleroderma? Join us at the KGS2 Conference in Orlando, Florida, July 14-16. This conference is a great opportunity to learn more about scleroderma-related topics and connect with others with similar experiences. scleroderma.org/conference #scleroderma #KGS2

“We are normal average kids that have an extraordinary life journey ahead of us.” Emilie Grace Julian’s #scleroderma experience began when she was six years old. She and her mother, Fernella Julian, are grateful to the @scleroderma and are raising awareness about this disease.

Emilie Grace Julian, a 12-year-old affected by #scleroderma, loves playing the trumpet and hopes to learn to play other instruments. She credits Louis Armstrong as one of her biggest inspirations. Thank you, Emilie, for sharing your story with us.

We’re excited to evolve into the National Scleroderma Foundation! Our organization currently benefits more than 300,000 Americans affected by #scleroderma and plans to continue to grow our network and impact over the coming years. bit.ly/33i4Kve

We’ve broadened our reach with a new name: National Scleroderma Foundation! This change reflects the breadth of our outreach to educate a national audience and connect more people affected by scleroderma with specialists and resources. Learn more: bit.ly/33i4Kve

Check this out! #sclerodermakids #scleroderma #awareness #holidays

sclerodermami @sclerodermami

4 years ago

Check this out! #sclerodermakids #scleroderma #awareness #holidays

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Whatever reason you give, you can make a difference!

You’re not alone navigating your child’s emotions associated with scleroderma and care. Join us for an online support group on December 1 from 7:30-9:00 p.m. EST. to find tips, tricks and support. Register now at bit.ly/3nIxBQY.

You can support kids with #scleroderma by making a gift to the Scleroderma Foundation tomorrow on #GivingTuesday Make your gift here: scleroderma.org/givingtuesday #sclerodermatough #sclerodermakids #hope

Happy Thanksgiving! #scleroderma #sclerodermakids #thanksgiving #holiday #hope

Great opportunity for all of our #caregivers! #scleroderma #autoimmune #support

National Scleroderma Foundation Rocky Mt. Chapter @SclerodermaCO

4 years ago

Great opportunity for all of our #caregivers! #scleroderma #autoimmune #support

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Make a difference today! Set up a Facebook Birthday Fundraiser. Facebook fundraising is so simple to do, you can be up and running in five minutes. Choose the Scleroderma Foundation as your non-profit. facebook.com/fund/Scleroder… #Scleroderma

We care about our caregivers! Take a listen to our roundtable discussion hosted by @SclerodermaTS if you are caring for someone with scleroderma. #caregivers #scleroderma #kidsgetsclerodermatoo

Don't forget to register for our conference tomorrow! You can register here: ow.ly/n9eK50Gh4wX 😀 Hope to see you there! #kidsgetsclerodermatoo

Virtual Meet Up Paint Party for youth with #scleroderma ages 10 to 17 via Zoom, October 23, 2021; 3:30-5 PM Eastern. REGISTER by the OCTOBER 13 DEADLINE and receive a paint kit in the mail (max 2 kits per household). Don't miss out. docs.google.com/forms/d/e/1FAI…

The Scleroderma Foundation has more than doubled its research funding to $2.723 million annually, including earmarks for #scleroderma-related lung disease and #pediatricscleroderma. Effective for 2022 grant cycle, deadline extended to 9/30/21. scleroderma.org/researchapply.

No two scleroderma journeys are the same. That’s why the Scleroderma Foundation supports individuals and their families every step of the way – with fundraisers, support groups, virtual tools, medical resources and more. See how. #SclerodermaFoundation bit.ly/3wPIZws

Meet Julia, a 10-year-old with scleroderma from California. In addition to participating in Scleroderma Foundation conferences and fundraisers, Julia and her family lean on the Foundation for support. #SclerodermaFoundation bit.ly/3wPIZws

Our second Parents of Children with #Scleroderma online #supportgroup of 2021 is being held on April 7 from 7:30-9:00 p.m. Tune in to learn tips to accept the unknowns in your life. buff.ly/3sPfCsK