Scleroderma Foundation - MN Chapter @SclerodermaMN
The Scleroderma Foundation Minnesota Chapter is a #nonprofit serving as a voice for those in Minnesota living with or affected by #scleroderma. Minneapolis, MN Joined January 2019-
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Thank you for your service and bravery, today and everyday! 🇺🇸 #VeteransDay
“Our study is one of the first to report mental health symptom changes during #COVID19 in a vulnerable population with a pre-existing medical condition and the first to compare symptom changes across countries." sclerodermanews.com/2020/10/06/cov… #scleroderma
This weekend we hosted our virtual Patient Education Conference and we are so grateful to all who joined us! A special thank you to Dr. Jerry Molitor and Dr. Joanna Harper for your engaging, informative and enlightening presentations! #scleroderma #sclerodermaawareness
Shopping AND giving back? Yep, you can do both! Make a difference while you shop #PrimeDay deals on 10/13 & 14. Simply shop at smile.amazon.com/ch/41-1802254 or with @amazonsmile ON in the Amazon Shopping app and AmazonSmile donates to #Scleroderma Foundation Minnesota Chapter.
We couldn't bear the thought of skipping this year's Patient Education Conference, so we're taking it virtual! Mark your calendars for 10/17. The event will take place on Zoom from 10AM-12PM. Stay tuned for more info!
Register for this awesome event!!
Happy #NationalNonprofitDay! We are proud to be a #nonprofit organization dedicated to making a difference in the lives of #scleroderma patients and their families, and we're thankful for you and your support so we can keep doing the work we love!
It's #WellnessWednesday! Did you know that there are #yoga practices specifically for people with scleroderma? Check out this site for yoga poses catered to those with #scleroderma! yogaforscleroderma.com/home #wellnessmonth
August is #WellnessMonth! We know it is difficult, uncomfortable, and sometimes downright impossible to exercise when you're suffering from #scleroderma. But @sclerodermaUM has some #exercise guidelines in this great video: bit.ly/3icspzr
Not today, #COVID! Although all in-person support groups have been cancelled, we are continuing to host regular virtual support groups. Contact a group leader for more information. bit.ly/3hIRVvL #scleroderma
Did you know that @SclerodermaNews has a page specifically dedicated to providing COVID-19 updates and resources for #scleroderma patients? And it's updated weekly! Check it out at sclerodermanews.com/information-ab…
#Research Update! “This study is truly a landmark, in that it will share our experience at UNM successfully treating children with #scleroderma in this safe and novel way, and will likely help children with this rare disorder around the country." sclerodermanews.com/2020/07/06/ore…
Get LOUD and spread the word about #scleroderma! #sclerodermaAware
Use your voice and join us for the National Day of Action on June 29! We want a cure, we NEED a cure. #scleroderma #sclerodermaawareness #sclerodermaawarenessmonth
Use your voice and join us for the National Day of Action on June 29! We want a cure, we NEED a cure. #scleroderma #sclerodermaawareness #sclerodermaawarenessmonth
We're just TWO DAYS away from the virtual #SteppingOutToCureScleroderma walk in the Twin Cities! Join us by sharing your selfies on Sunday with #MySteppingOutSelfieMN!
I mean, come on. Does it get much cuter than this?! Little Sophie is ready for the virtual #SteppingOutToCureScleroderma Walk on Sunday! There's still time to register/donate at scleroderma.org/steppingoutmn. And don't forget to share your photos with us using #MySteppingOutSelfieMN.
Who has Stepping Out spirit? Amy has Stepping Out spirit! How are you participating in the virtual #SteppingOutToCureScleroderma virtual walk on 6/14? We want to see! Share your photos with us by using #MySteppingOutSelfieMN. Register and donate at scleroderma.org/steppingoutmn!
Who's out there walkin' for #scleroderma awareness? Elaine and Zoli are! Elaine is a Scleroderma Foundation - MN Chapter board member and the West Metro Support Group leader, and they're out there sharing their #MySteppingOutMNSelfie!
We can’t find a cure without YOU! Join us virtually on June 14th for the 2020 Stepping Out to Cure Scleroderma Walk! Wear your teal shirt and hit the streets, the backyard, the treadmill or the kitchen. Props to the most creative participants and outfits! #MySteppingOutSelfieMN
Today we honor those who have given the ultimate sacrifice 🇺🇸 #MemorialDay #MemorialDay2020
ScleroCare @ScleroCare
6 Followers 78 Following 🌿 Empowering Scleroderma Patients 🌟 📚 Education | 💡 Resources | 🩺 Support 🔗 Explore more: https://t.co/u7Mm1lZk0w
Lra_Yaya_Rdgz @lrardgz25
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Detheski @detheski17137
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CDNurse2000 @Mshutch25
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Cosimo Bruni @CosimoBruni
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Julie🟧 🟦 @Juliethewarrior
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gülcan gürer @glcangrer7
5 Followers 87 Following
Archives of Rheumatol... @ArchofRheum
216 Followers 432 Following Official journal of the Turkish League Against Rheumatism (TLAR)| #CiteScore 2024: 2.1 | #WOS 2024 IF: 1.1 |Q4 Journal Editor in Chief: Prof Meltem A. MELİKOĞLU
Cureus Rheumatology @CureusRheum
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NIKKI (NOVICIC) LATIM... @6669NIKKI
606 Followers 3K Following #JUSTICEFORSARA #SARAFAYELATIMER 8/10/1989~5/10/2022 BRUTALLY HONEST, LUV MUSIC, I HAVE SCLERODERMA, HAD A STEM CELL TRANSPLANT & I'M A SURVIVOR..SO FAR!
Olga Eyzaguirre @OLGUI_PAZ
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Prof. Vasiliki Liakou... @VLiakouli
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Courtney Perrine @cperrine448
135 Followers 436 Following I’m a fun-loving 30-something that is trying to live her best life while fighting multiple autoimmune diseases and chronic conditions. Wife. Mother. Friend.
Sarah @swagger372
2K Followers 2K Following Mom of 3• Divorced• #Chicago•#MiamiU•#Northwestern•Fighting #Scleroderma/#RA/#Lupus/#Raynauds/#POTS
Dra. Natllely Itzel R... @NatllelyRuiz
484 Followers 707 Following Mexican Rheumatology. Interstitial lung disease. Vasculitis. UMSNH/UNAM. Didactic Master in Health Sciences Teaching and Master in Medical Sciences ANAHUAC.
SclerodermaAustralia @ScleroAus
75 Followers 94 Following Scleroderma Australia has been incorporated since 2005 to facilitate a national representative voice in supporting our scleroderma community across Australia.
Dr.ismihan @dr_ismihan
255 Followers 411 Following Rheumatologist. Assoc. Prof at Ankara University. AAAL '01, Hacettepe University School of Medicine '07, Ankara University Rheumatology '19.
Living with Scleroder... @claudia_sultan
23 Followers 145 Following Author of A life with Uncertainty 📚 BSci Psychology 🎓 Scleroderma Survivor 🌻 Interstitial Lung Disease Warrior 🦋 Follow my journey
boney @boneyjalgar
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Neslihan Gokcen @NeslihanGken7
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Free @nedwardsmusic
262 Followers 808 Following I believe that winners are not born, and they can become what they want to be through their own efforts.
Scleroderma Manitoba @MBScleroderma
223 Followers 117 Following Helping the scleroderma community in Manitoba connect through awareness, education, patient support and fundraising to support research. #youarenotalone
No Truffe😷💉💉... @NoTruffe
483 Followers 2K Following 27 ans d'ind. pharma, 25 d'assoc (fin de vie, sos inceste) psy pour toujours, #scléroderm à l'occasion je suis née, je vis....et je mourrai...what else?
simon @xrplibre
0 Followers 263 Following
Falk Schumacher @FalkSchumacher1
188 Followers 354 Following MD Rheumatology Cologne, Germany - Krankenhaus Porz am Rhein
mila kidas @MilaKidas
3 Followers 41 Following
Mark Moran @MarkyMoran
922 Followers 1K Following Husband Father Teacher Coach Golfer Fisherman Fantasy Sports Card Collector $TRUBGR $SAFEST $FEG $SHIB $BEZOGE $NSI #SlickGang
Scleroderma Awareness... @SclerodermaKC
389 Followers 403 Following Scleroderma Awareness of Kansas City to educate and make people aware of scleroderma in their community.
Hi, It's me @JyotiBudhatho10
18 Followers 252 Following Surviving systemic scleroderma with Taylor Swift’s music folklore, Speak Now, & evermore heal me, her lyrics break me, yet make me whole again. #Fearless
Lyhuy @LyhuySao
212 Followers 3K Following
mrnmrsstoners @mrnmrsstoners
27 Followers 1K Following
Bimba Hoyer @spacerheum
817 Followers 499 Following flight surgeon, rheumatologist, scientist, AME @kieluni @dlr_de . focus on #autoimmunity #inflammation #immunology #plasmacells, #spacemed my posts=my thoughts
Alessandro Giollo @DrAleeG
716 Followers 879 Following PhD | @eular_org @EMEUNET 🇪🇺 | Consultant in Rheumatology @OspedalePadova 🇮🇹 #RA #scleroderma #vasculitis #osteoporosis
Katlynn @Katlynn91397294
0 Followers 111 Following
Zak Karsan @ZakKarsan
58 Followers 94 Following
Alison Zheng @zhengyuanyuan24
45 Followers 325 Following President of Chinese Organization for Scleroderma
ರಾಹುಲ್ �... @Dr_rahul32
568 Followers 1K Following a doctor by profession.. MD Medicine, DrNB (clinical Immunology & Rheumatology)..Rheumatologist.. ||जननी जन्मभूमिश्च स्वर्गादपि गरीयसी||
Zilola @Zilola67576228
0 Followers 2 Following
Scleroderma Kids @SclerodermaKids
26 Followers 24 Following Did you know that Kids Get Scleroderma, Too!? Learn more and be sure to check out our coloring book at 👇 #sclerodermakids #kidsgetsclerodermatoo
Vanessa Cerrone @EventDesignerV
220 Followers 987 Following Event Project Manager | Sustainability-Minded | President, Butterfly APS-Committed to the rare diseases patient community
Scleroderma India @ScleroIndia
538 Followers 287 Following A Charitable Trust and Patient Support Group
@passion4people @levenvolpassie
9 Followers 209 Following Enthousiaste dame met een passie voor mensen | Tweets op persoonlijke titel
Sue Farrington @FarrSue01
419 Followers 437 Following Chief Exec Scleroderma & Raynaud's UK (SRUK) - @wearesruk - President FESCA - Chair Patient Information Forum (PiF) @pifonline
🇪🇺 Ilaria Galet... @iaiaraia
345 Followers 632 Following SSc patient advocate Vice Chair of FESCA and GILS, ERN ReCONNET ePAG, Equal access to therapies is my obsession
𝓐𝓷𝓰𝓮𝓵�... @angeleyez407
20K Followers 22K Following (っ◔◡◔)っ ♥ Years in the medical field. Love my job. 💖 Cats DACA I didn't vote for the felon.
National Scleroderma ... @OhioScleroderma
389 Followers 316 Following
National Scleroderma ... @sclerotxchapter
330 Followers 98 Following National Scleroderma Foundation Texas Bluebonnet Chapter
Raynaud's Disease @Raynauds_UK
766 Followers 128 Following We are here to help with guidance, advice & products to help you manage Raynaud's Disease.
Amy Agur @metconmaven
188 Followers 50 Following Are you a pun-loving 🇨🇦 who runs on caffeine and anxiety? Wait that's me 🙉
#MondayMotivation @MotivatorMonday
212K Followers 0 Following Motivating you to help start your day right! #MondayMotivation #MotivatorMonday #MotivationMonday #MondayMorning #MondayThoughts
EUSTAR @EUSTAR_org
1K Followers 150 Following European Scleroderma Trials and Research group - aims to foster the awareness, understanding and research of scleroderma and its management throughout Europe
Pulmonary Fibrosis Fo... @PFFORG
7K Followers 1K Following We imagine a world without pulmonary fibrosis. https://t.co/e5cmq67fNV
Dr. Dinesh Khanna @sclerodermaUM
3K Followers 90 Following 👉University of Michigan Scleroderma Program leading the way through excellence in clinical care, teaching, & research #scleroderma tweets≠advice Follow≠endorse
Corbus Pharma @CorbusPharma
6K Followers 2K Following Committed to leveraging expertise in immunology to fulfill purpose of developing innovative new medicines that improve lives (NASDAQ: $CRBP)
Scleroderma Foundatio... @SclerodermaNE
391 Followers 42 Following Scleroderma Foundation New England Chapter
National Scleroderma ... @SclerodermaTS
780 Followers 184 Following We strive to raise awareness, support #scleroderma patients and raise funds for a #cure. https://t.co/VclqavsAxC
Raynaud's Assn. @raynaudsorg
4K Followers 692 Following The Raynaud's Association is a national non-profit organization providing support and education to the millions of sufferers of Raynaud's Phenomenon.
National Scleroderma ... @SclerodermaCO
870 Followers 128 Following The National Scleroderma Foundation was founded to advance medical research, promote disease awareness, and provide support to people with scleroderma.
SuperStarz38 @skindeep217
128 Followers 294 Following Patient Advocate,SPIN, Steffens Board Member, SYNC Creator,CoFounder of The Waiting Room Entertainment
SclerodermaRF @SclerodermaRF
887 Followers 937 Following Scleroderma Unit @royalfreenhs Tweets by long term #dcSSc patient, Nicola Whitehill, volunteer https://t.co/b5D1YSUThT
World Scleroderma Fou... @Worldsclerofnd
2K Followers 327 Following The World Scleroderma Foundation is a non-profit, non-governmental foundation based in Switzerland, promoting scleroderma research and supporting patients.
Scleroderma Society o... @scleroderma_sso
2K Followers 2K Following We are committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma. #scleroderma #autoimmunedisease
Dipex Charity @healthtalkorg
6K Followers 743 Following We run https://t.co/PL3XT6xuTd & https://t.co/qBDgtuoOhD. Embed our videos with Dipex+! Interested in doing a research project with us? Email [email protected].
SRUK | Scleroderma & ... @WeAreSRUK
5K Followers 1K Following Scleroderma & Raynaud’s UK is the only charity dedicated to improving the lives of people affected by scleroderma and Raynaud’s.
Scleroderma Fndtn GW @SFGWDC
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Scleroderma Canada @SclerodermaCAN
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NIHR Leeds BRC @LeedsBRC
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The Minnesota Star Tr... @StarTribune
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UN Women @UN_Women
2.3M Followers 4K Following UN Women is the United Nations entity for gender equality and women's empowerment.
World Health Organiza... @WHO
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Larah - Low FODMAP @LarahBrook
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1K Followers 8 Following We provide peer-to-peer patient support service, educational programs, and raise funds to support the Foundation’s research and awareness.
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info@medicalresearch.... @medresearchnews
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UNICEF @UNICEF
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